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Charlotte's grandson Tristan's Page


 Tristan's Journey
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Hi All,

I have included a message from Tracey. Children's hospital provides a web-site called Care Pages and Tracey is the manager of this one that she calls, "Tristan the Warrior". I don't think everyone can have access so I am updating you on what she has written on the care pages.

As she states in her message, he has had quite a round of chemo and still has four days to go before he gets to come home.

Thanks to everyone that thought about him on Monday, it worked because he came through it with no problem that we know of, so far. There are side effects with this non-approved drug Retux, and we did have to be watchful for the first 24 hours. But he truly is a warrior.
Please continue to keep those thoughts circling the universe for this miracle boy, because remember together we will "MAKE HIM BETTER"

What can I say, my son is the boy of steel. Look out Superman because the warrior is in town.

Tristan was admitted into the hospital on Monday the 18th for his last round of chemo before he starts the pre regimen chemo for the bone marrow transplant. This is the round I was worried about because Tristan received an antibody called Rituximap that is not yet FDA approved for intrathecal injection. What I mean is injecting the drug into his spinal fluid through his Ommaya Reevoir located in his head.

I will update later Tristan wants me to watch a movie with him now.

We all know he's the boss.

Peace
Posted by Charlotte at 9:16 PM - No Comments   Add a Comment  
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  About Me
Author: Charlotte
From USA
 
This blog is about...
Tristan is an 11 year old boy with Burkitt's Lymphoma and this is his adventure....
 
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