Hi Everyone,

I hope your week was a good one.

Tristan goes to Children's Hospital tomorrow to have the Ommaya reservoir put in. I believe the time is 8:00 a.m. for the surgery. After the surgery he will probably come home. The doctor wants the area to heal a bit before they start the Retuximopab (Retox). He has been home since last Saturday but getting an anti-biotic every 8 hours for the infection.

This would be a good time for everyone to come together in their mind and think about him, about 8:00 a.m., as he goes through the surgery to have this reservoir installed in his head.

The whole ordeal has changed Tristan and I am sure if it happened to one of us, we too, would see some changes in ourselves. He seems to think that he is a freak, that he is ugly, that his voice is not like it should be, yeah you are going on 12 years old and your body is changing. That's what I tell him, but I don't know how I would feel if it was me. Pissed, that's how I would feel at first, then sad, all of the feelings that go with a disease like cancer. We keep him optimistic, or rather we try to, but it is not as easy as one would think. But we will not give up on him, for any reason.

Keep those thoughts circling and keep saying, "MAKE HIM BETTER"

Love,

Charlotte
Tristan's Mimi