Tristan told his mom today "that he felt like his old self", this from a guy with a bald head and iv lines that are ports for his chemo, and the mask he has to wear because he is neutroponic....he felt like his old self....how wonderful to hear those words coming from him. He is smiling a lot more the last few days because he feels good....it seems that it takes him about a week and a day after chemo to feel somewhat good enough to talk and laugh and to interact with everyone.

Tomorrow he goes to the lab and will probably receive platelets to replace what he has lost to the chemo. If everything goes well he will start round 1 again for the 2nd time, on Friday the 24th of August. More than likely he will be in for the week-end. I am sure he would like to be at the benefit but he can't be around germs etc...it would make him to susceptible to infections, so we are really monitoring that end of it.

I have been trying to figure out a way that he could join us for the benefit by web cam or something...does anyone have any ideas how he could be there to interact but not there? All suggestions are welcome!!!

Remember Sunday Aug.26 from 9:00 a.m. to 11:30 is the benefit for Tristan at the VFW hall in Wixom on Loon Lake Road. Donation is $6.00

Please come and join us and bring your friends and family....

Charlotte
Tristan's Grandmother

Hi Everyone,

Again I have misspoken on Tristan's Chemotherapy...he did have round 2 that started on Friday and finished on Monday night. The chemotherapy that he is having continues for four rounds each.

He is not feeling well because the chemo has destroyed his red blood cells as well as his platelets and white blood cells. Tomorrow he goes back in for lab work to see if he can start round 1 again. He will probably end up having another blood transfusion. If anyone is a blood donor this would be a good time to do that. Tristan is O negative like his mother and myself. I think you can even specify his name on the donation. Not that he will get that but they will know that it replaces what has been used for him.

If you have read the blog and wanted to leave any comments, you have to register like you are going to start a blog, but in fact you are just registering to leave comments. For some reason this is confusing and the web designers need to fix it. If you can't figure it out just send it to me at my email address: catrombley@gmail.com

Thanks again for all of your support....

Hi Everyone,

I haven't given you an update in a while and thought that it was time.
Tristan did not have chemo on August 3rd because his platelets and white blood cell numbers were too low. So instead they gave him a blood transfusion, started him on Vivaran (caffeine), which gave him more pep, so that the week of August 1, he was talking more and interacting more with other family members as well as his friends.

Having his friends over a couple of times last week was just what he needed to give him a boost. There is just something about friends that makes one feel better. And they certainly did that for him.

Friday, August 10, he went to the hospital for his second round of chemo, which was mega doses, to knock that damned cancer out of him.
Did I mention that his hair has now fallen almost completely out? It didn't take long for that to happen, from July 16 to Friday August 13th, he had hair, had it buzzed off on August 13 and after that he decided to help it along.

Of course, he is pale and has lost weight and is now this bald beautiful boy.....

I am trying to contact as many people as possible to get the message out about the Breakfast Benefit for Tristan. It will be at the American Legion Post/VFW Hall in Wixom on Loon Lake Road. The breakfast starts at 9:00 a.m. and for a scrumptious breakfast you will only have to donate $6.00. And the date is August 26, 2007 9:00 a.m.

I will continue to update everyone on Tristan's Journey as he runs into bumps in the road.

Charlotte
Tristan's grandmother

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